Epilepsy Foundation of Rochester-Syracuse-Binghamton

Camp EAGR I Community Education I Case Management & Service Coordination I Employment Solutions 
Family Services I Residential I Scholarship I Support Groups I TBI Services

Here are some brief descriptions of what we do for others.  Feel free to follow the links for detailed descriptions of the programs that interest you.  

Information, Intake and Referral
Accessing information and services from a non-profit human services agency such as the Epilepsy Foundation does not have to be a difficult process.  We're happy to provide you with some tips and guidelines.

Epilepsy Foundation services are not just for people with epilepsy.  We also serve children and adults with traumatic brain injury, stroke, and developmental disabilities/MR. Our experience has shown that people with other diagnoses (and their families) do benefit from our expertise.  Why?  Because the needs and issues of children and adults with other diagnoses are remarkably similar to those with epilepsy.

The easiest way to find out about us is simply to call us.  You'll be connected to a social worker who can describe our programs, answer your questions, and get the enrollment process started.

Please call the Epilepsy Foundation at (800) 724-7930, Monday through Friday, 8:30 AM to 4:30 PM or e-mail us.
Or, if you would like to contact a specific office, use the numbers below.

Rochester Office: (585) 442-4430 or toll-free (800) 724-7930 
Syracuse & Binghamton Office: (315) 477-9777 or  toll-free (877) 214-7715

Let us work with you to determine the best programs to meet your needs and the best way to enroll in them.  Prior to calling, you may wish to scroll through this website and learn more about our programs and services.

Some of our services require certification/eligibility from the Department of Health, from Medicaid and/or the Office of Mental Retardation and Developmental Disabilities (OMRDD); other services do not require such eligibility. Our staff works closely with families and individuals before, during, and after any eligibility process to be sure the services they need are provided.

Camp EAGR
A week-long residential summer camp in upstate New York for boys and girls, ages 8 to 17, who have epilepsy, regardless of seizure control. Camp EAGR uses the facilities of the YMCA's Camp Weona, located near Warsaw, New York.

Community Education
Workshops and presentations for schools, civic groups, corporations, and agencies are offered on how to identify and respond to seizures and on general issues related to individuals with epilepsy.

Case Management & Service Coordination  
Epilepsy Foundation's staff of social workers and service coordinators offers a variety of case management and Medicaid service coordination programs for individuals and their families. We also offer community habilitation, STRESSpite (a respite program) and a Family Reimbursement Program. Some services require certification/eligibility from the Department of Health, from Medicaid and/or OMRDD;  other services do not.  We encourage anyone interested in these programs to call us for help and guidance.

Employment Solutions    
Employment Solutions provides the training and support needed for individuals with disabilities to sustain competitive employment.  The School-to-Work program provides high school students with the necessary tools needed to make the transition from school to the world of work. Our Supported Employment program works with individuals after their formal schooling has been completed and offers a job club and an employment club.  

Family Services
Our STRESSpite program offers families respite in order to relieve some of the daily stresses of caring for a child with special needs. Our Family Reimbursement Program offers some financial assistance to families to assist them in meeting on-going needs for a child living at home with epilepsy and/or other developmental disabilities.  Short-term counseling is offered to newly diagnosed individuals and their families.

Residential Programs
We run a variety of residential facilities for individuals with epilepsy and developmental disabilities who wish to live in a group setting yet need varying degrees of supervision and support. Certification by OMRDD is required.

Scholarship Program
Rochester attorney and Epilepsy Foundation board member Stephen A. Segar has created a scholarship program that helps high school students with epilepsy go on to college, vocational or technical training. Scholarships are awarded to three students who attend high school within the 22-county territory served by the Epilepsy Foundation.

Support Groups
These services are available to everyone and include support groups for adults with epilepsy, for parents of children with epilepsy, and for parents of children who have sustained a traumatic brain injury. Visit our Events page for complete support group details.

Traumatic Brain Injury Services
The Epilepsy Foundation has the staff and the expertise to provide a full range of services to individuals with traumatic brain injuries, stroke, and brain damage as a result of chemotherapy and/or radiation therapy for cancer:  service coordination, counseling, an intensive behavioral program, and assessment and training for living skills.