Epilepsy Foundation of Rochester-Syracuse-Binghamton

The Epilepsy Foundation of Rochester-Syracuse-Binghamton is excited to announce that our Summer Series of education events kicks off this Thursday.  We have planned six great events all over New York.  Each event will feature a neurologist speaking on a specific epilepsy topic and a book reading and signing with Erica Dunton, author of Seven Days at Camp EAGR, a children's picture book about our camp for kids with epilepsy.

Register for the one closest to you today!

Thursday, June 24 from 5 pm to 7 pm

Strong Museum of Play, Rochester, NY

Dr. Robert Gross from the Strong Epilepsy Center will speak on Behaviors Surrounding Epilepsy.

Tuesday, June 29 from 3:30 pm to 5:30 pm

Wood Library, Canandaigua, NY

Dr. William Kingston from Ontario Neurology Associates will speak on Seizure Types and Accessing Epilepsy Services.

Tuesday, July 13 from 5 pm to 7 pm

Tompkins Public Library, Ithaca, NY

Speaker and topic to be announced.

Tuesday, July 20 from 5 pm to 7pm

Broome Public Library, Binghamton

Dr. Robert Beach from the Epilepsy Program at Upstate University Hospital will speak on New Treatments for Epilepsy.

Saturday, July 24 from 11 am to 1 pm

Utica Children's Museum, Utica

Dr. Paul Kent from the Epilepsy Program at Upstate University Hospital will speak on New Treatments for Epilepsy.

Saturday, July 31 from 11 am to 1 pm

Manlius Public Library, Manlius

Dr. Carl Crosley from the Epilepsy Program at Upstate University Hospital will speak on Epilepsy & Child Development.

Camp EAGR is August 15–21 and registration is officially open!

Camp EAGR is the Epilepsy Foundation of Rochester-Syracuse-Binghamton’s weeklong overnight camp for children and teenagers, ages 8–17, with epilepsy. It is located at the YMCA’s Camp Weona, just outside of Warsaw, N.Y. It’s a great opportunity for children to participate in activities such as swimming, horseback riding, canoeing and arts and crafts. Along with approximately 30 qualified counselors, Camp EAGR also has a neurologist and 2–3 registered nurses who remain at camp the entire week. The cost is $400 and financial aid is available.

Learn more about Camp EAGR here or check out lots of Camp photos here.

If you have specific questions or you would like to register, please contact Camp Director Mike Radell at (800) 724-7930 , or (585) 442-4430 ext. 2702, or mradell@epilepsy-uny.org.

The Hickok Center for Brain Injury hosts a free Brown Bag Educational Panel entitled “The Brain – Living With Epilepsy” on Monday, March 29, 2010 at their Rochester Center located at 114 South Union Street, Rochester, NY 14607 from 11:30 a.m. - 1 p.m.

The panel will feature: J. Craig Henry, MD, Assistant Professor of Neurology, Strong Epilepsy Center; A. James Fessler, III, MD, Assistant Professor of Neurology at University of Rochester and Director of Clinical Research and Assistant Director, Strong Epilepsy Center; and, our very own Michael Radell, Community Educator & Camp EAGR Director, Epilepsy Foundation of Rochester-Syracuse-Binghamton.

This is the first of four brown bag educational events the Hickok Center will host throughout 2010. Bring your lunch and learn about the medical and social issues of living with epilepsy. If you or someone you love has epilepsy, here is an opportunity to learn and ask questions of area professionals. Lot and street parking available.

Reservations strongly suggested as seating is limited. To make a reservation, please call (585) 271-8640 x207 or email ghewson@hickokcenter.org to reserve a seat.

November is Epilepsy Awareness Month!  Celebrate by attending one (or all) of our free educational events.

On, Tuesday, November 10, we are hosting a special Parent Family Network Dinner at Upstate University Hospital in Syracuse.  All family members are welcome.  Kids will enjoy a special activity while parents are invited to listen to Dr. Helen Barkan give a talk on When Seizures Don't Look Like Seizures.  Dr. Barkan will discuss absence and other types of non-convulsive seizures and strategies to use if a family member has these types of seizures.

On Thursday, November 12, we are hosting a special Parent Family Network Dinner at our Rochester Office.  All family members are again welcome to this event as children's activities will be provided.  Dr. Kenneth Plotkin will be speaking on Interacting with Your Health Care Provider to Ensure Better Health Care.  Dr. Plotkin will talk about the importance of being informed about your health and will provide strategies that will help you to be the best health care advocate for you and your family.

On Friday, November 13, we are hosting an Epilepsy Education Luncheon in Geneva at the Ramada Lakefront.  Registration begins at 11:30 and lunch will be served at 12 noon.  After lunch, Dr. Paul Kent will present on Current Treatment Options and our social worker, Robin Didas-Mott, will present on Epilepsy at Any Age.  The luncheon will conclude at 3 pm after a Q&A session with our speakers and other invited guests.

On Wednesday, November 18, we are hosting a second Epilepsy Education Luncheon at the Holiday Inn Arena in Binghamton.  This special luncheon will feature Stephen A. Segar, Esq., an Epilepsy Foundation Board Member, a successful Rochester attorney, and an adult living with epilepsy.  Mr. Segar is an amazing speaker and will be sharing his powerful story of how he has struggled with epilepsy.  This luncheon will also feature Dr. Robert Gross speaking on Epilepsy Medications and Debra Lewis, EF's Community Educator, speaking on Health Care Planning.  This conference will also conclude at 3 pm with a Q&A session with the speakers and other invited guests.

Join us for one or all of these exciting educational events during the month of November.  All events are free and open to the public.  Seating is limited, so please register in advance by calling us at (800) 724-7930 or e-mail us at info@epilepsy-uny.org